I have a couple updates.. Thursday I went in to my Endocrinologist expecting some finality and a script for some meds to get this tumor docile. For something so small it sure it wreaking havoc on my body! Well, I should know by now to not expect anything-- that is a key to happiness.. Since my general physician and the rest of my team are all at College Park they can see and share labs, reports etc.. Well, this doc is at a specialty center at Shawnee Mission so he had no access to ANY of my info. He had a fax of my basic info but no bloodwork results etc.. Luckily, I carry my MRI report in my purse now all the time in case someone needs to see it. So he was able to make a copy of that but, needs to get some bloodwork done so he can see what all my hormones are doing. He also mentioned being concerned with my Adrenal gland which regulates and pumps Cortisol. So I have to take a pill the night before I go get blood drawn and fast for 8 hours. That appt is set up for Tuesday 30th @ 9:15am. Then I will go back to see him on Nov 7 for results and possibly more tests, but lets hope not!
Monday I meet with my Neurologist about my papilledema aka eye issue.. I have no idea what to expect there. All three doc so far think its unrelated to the tumor.. Who knows?
Tuesday I go back to the Ophthalmologist to do a field vision test. It check for any loss of vision as well as glaucoma and other tumors.. I will probably need someone to come with me since I suspect I will be dilated..
One more thing, my tumor is causing my body to have another period 8 days after my regular cycle ended. If it doesn't clear up by Monday I need to go back in to see Dr.W
That's all for now! I'm a mess, haven't had time to process much just moving from one thing to the next.. Trying to stay brave for the kids and keep busy. I have moments of the ugly cry when I'm alone.. Which is rare.. But I do love any messages people send me! It keeps me going strong. Love you all!
2 comments:
Praying for you! So sorry you are having to go through all of this. Call/text/email if you need anything. :)
When the going gets tough, the tough get going. Hang in there, Raychel. One day at a time. I'm thinking about you....
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