It's been a while since I updated. I went to my Neuro last week and did some field sobriety tests -- as I am familiar with them.. (Walking a straight line, touching your nose etc) turns out that she thinks based on my papilledema diagnosis that I have what is called Pseudo Tumor Cerebri. This is confusing to some, so let me break it down.. Basically, my brain has a lot of pressure surrounding it which is causing my optic nerves to swell and that in turn causes headaches. Pseudo Tumor just means I am having tumor related symptoms with my eyes without a tumor. This is NOT related to my actual tumor on my pituitary gland.
This PTC is common in obese women of my childbearing age. So, in that sense it's related to my Pit Tumor ( which makes it hard to lose weight) I was advised to lose A LOT of weight to help lower the pressure in my head. For now I am on glaucoma medicine which is essentially a diuretic. It does help but, makes me very absentminded and forgetful.. It's frustrating for me. I talked to my nurse and she said it is a side effect although not the most common one to have.. Go figure! :)
My eye doc did a vision test and then said to stay on the meds and maybe even increase the dosage since I'm on the smallest dose. Apparently my GP wasn't comfortable prescribing this medicine for me so he gave me a low dose. I will do a follow up with them both in January and made need a spinal tap to check how high the pressure is. That freaks me out!!
So, this week I have one appt with my endocrinologist on Wed and hopefully with my current blood work he will be ready with a plan of action for shrinking this tumor (and my body) :-)
Thanks for keeping up with me! It's great to know people care! <3
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