I went to my endocrinologist today for a follow up on some bloodwork. Since he had no records because he's in a different hospital system. He said my prolactin is still elevated but my other hormones look fine, including my cortisol.
Then he told me he thinks my tumor is non-active. Meaning its not secreting anything and I have what's know as Stalk Syndrome. Basically the channel your hormones run back and forth on are being blocked by this tumor. Which is causing the prolactin levels to rise and the dopamine levels to plummet. It's good that none of my other hormones are wacky. I'm kinda confused by this news but, he said with this medicine I am going to take if the tumor was secreting it would shrink it. But he doesn't think that's the case.
So, I will be taking a pill 2x's a week to get my hormones back in balance and this will be long term.. As in Year to 3 years.. With 3 month check ins and bloodwork and MRI's to monitor
it all.
The medicine may be expensive he warned and if you know how stressed about $$ I've been. Well, it tipped me over the scale of stress. Coupled with
This new blessing of a job coming up.. I have nothing to wear to it and everyone wants or needs money. It's getting overwhelming. Trying to trust God but, it's hard when your spending hundreds of dollars on medical stuff and the emotional side of this whole thing is just crushing. One thing I hadn't shared is that I have to choose to have any more kids or treat my tumor. So basically this f'ing tumor is taking that choice from me! It's hard for me.. I try to be grateful for the two I have and so on but, I am angry about it stealing something from me. I also have to lose 100 lbs! On my own, it's just too much and my eye thing with my glaucoma medicine is just awful I should stop writing.. Getting more depressed. I am going to my third interview at Target and see how much this medicine is. :-(( I know there's good in here but it's just so much.. Bear with me while I process. Thanks!
1 comment:
I'm scared for you to take a bunch of meds and for long time. I obviously have no clue what it is they are giving you for a treatment but listening to doctors about expensive treatments that in other ways are just as harmful seems scary. I think the best way to help anyone get better and even in cases of tumors is just eat healthier. I juiced a TON of fresh organic veggies for a guy that had cancerious tumors and everyday he would drink alot of the veggie juice and eat right and in few months his tumors were almost gone. Besides it also would help with weight loss to make sure your only eating fresh real food like fruits and veggies and giving up red meats and breads. anyways thats just my opinion but im just scared of doctors and their "treatments" especially now as im trying to get help with all my pain and they just want to put me on really bad meds. But whatever you do to change your life so that you can get healthy I wish you all the best in it and that you stay with it and really make the life change! Love you girl and God Bless!
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