Updates and vow to blog more..

Hey All! I have had a handful (or two) of people wonder what is going on? What is the latest on my brain. I just checked out my blog and I guess I did leave people hanging, not on a very positive note either. I am happy to report I am in a much more positive place with it all and shouldn't be a debbie downer this post :-)

About 5 days after my last post (11/12) I made a "note" in my iPhone of all the blessings I had received so, that I might be more grateful. Here is the list..

Blessings received

Texts
Phone Calls
Prayers
Gas Money from family in KC
Monetary gifts from family in KC
Monetary gift from ANONYMOUS
Job at Target (though short lived)
Mother in law- helped me reactivate my 31 consultant status
Commission from 31 sales
Opportunity to sell 31 at my MOPS Holiday Mart


As I said those were a snapshot in time of all the blessings poured out from above, from LOVE. The monetary gifts were soo important at the time because I was going to various doctor appts several times a week. Not to mention the gift of friends who watched one or both kids so I didn't have to drag them with. My husbands flexible job that allowed him to work from home and/or use PTO to fill in. I mean, I counted at one point and just in the month of October I had 20 copays- that's $400! So, I was mainly focusing and freaking out about the financial side of things when this list was written.

The following day, 11/13 I got a phone call from my Opthamologist. She was concerned because at my follow up appt I had told them my Neurologist said I had psuedo tumor cerebri and had to lose 100 lbs ASAP! My optho disagreed with this diagnosis and wanted a second opinion. Since the only way you can actually diagnose pseudo tumor is by doing a spinal tap! yowch! She called my Neuro office and they got me in the following day 11/14. I had two Neuro P.A's look at me and examine and pour over my scans. They ended up dropping the diagnosis and taking me off the glaucoma medicine! Hallelujah! They BOTH said if they hadn't known my history and why I was in the office they would not see anything. They were going to request an eye MRI but, said if my Optho rejected it they would not press it.. I have never heard back on scheduling that MRI. : )

So, that brings us to now.. I am currently taking Cabergoline twice a week, when I remember.. eek.. and to be honest, I DREAD it. It completely wipes me out for about 1-2 days following my dose. So, in a given week I have 2 normal days to get stuff done. It sucks! This is also the reason why I wasn't able to continue working at Target. I loved it there but, physically standing for 5-8 hour shifts combined with my medicine affects was unbearable. Coupled with the children being unhappy on my departure.. I decided the best thing for the family and MYSELF was to quit..That's another thing I have had to do is really listen to my body and take care of myself . I know before this it would be so easy to curse myself for being a whimp and trudge on, but now I KNOW the difference between feeling down and feeling like I need a break, its all a journey!...Overall I have heard from close friends that my demeanor is more cheerful so, I guess that is a positive too!

I go back for check-ups every 3 months for bloodwork with my endocrinologist and opthomologist and neuro. Although, I am in need of a new neurologist. I am not to impressed with my experience thus far.. I did request to push my MRI's to every 6 months instead of every 3. Since I despise being enclosed! My first bloodwork check is Feb 21. So, I will update more then.

I do want to use this blog more to post fun family stuff too so, I hope to be doing more of that in the new year! Thanks for all your prayers! I believe they really worked!!