You know its never good when you go into the doctor for results on ONE possible adenoma and they start the sentence saying, So we found a couple things... huh?! plural? Exsqueeze me? Baking Powder?
Yes, 2 things!! A. I have a micoadenoma on my Pituitary Gland. It is less than a cm big and I am scheduled to see an endocrinologist for treatment/ further testing next Thursday.
B. They noticed a mass that turned up on my MRI. It is larger than my tumor and it is yet another tumor!
So, this is pushed my PIT tumor to the backburner and now I am focusing on this lovely tumor. It is known in medical lingo as Nasopharyngeal Mass. If you google Nasopharyngeal every result comes up with carcinoma or cancer..
This is located in the same neigborhood as my Pit gland but, different area code. I am going to see an ENT tomorrow afternoon and from what I have read online. Seems like, the next steps for this bad boy are.. they will scope me through my nose, possible CT and biopsy. I am preparing myself for the worst possible outcome which is the "c" word. But, I did read it is easily treatable with chemo and radiation and much higher success rate in young women. But that is only if it is Malignant! So... I will find out more tomorrow.
Another fun thing I learned is my Optic Nerves are enlarged and I am now being squeezed in to see a neurologist. Meanwhile I am on a diuretic that should help ease the pressure on my eyes and headaches I have been having.
Add in the boob biopsy my GP is still adamant about and I have 4 issues and 4 different specialists I have to see. I went out and bought a notebook tonight so I could keep it all straight.
Will update more later. I am tired and need to just shut my brain off. Night!
R
Wednesday, October 17, 2012
Saturday, October 13, 2012
MRI Experience
I had my first MRI last week and it was awful.. I mean, I survived and I'm still alive but, I had a major come to Jesus moment in that capsule.. I am already with Jesus but, we were re-enacting the Footprints poem! For Reals!! If you have never been, let me tell you about MY experience.. (please note: I do tend towards the dramatic side)
You go in there sans metal or bra in my case and there are two ladies, one who helps you..and one that is grumpy and sit behind the windowed wall.. Now that I think about it.. They stay behind the windowed wall while the machine is ON and I am on a table attracting magnets to me with no protection.. Weird. Anyways, so she asks if I have tattoos and I say yes, on my arm she says well it may heat up a bit.. WTH?.. Okaay? So I lay on a padded board after I put on my fancy hairnet and earplugs then she straps my head down with a belt and starts to pull this helmet down over my head which covers my whole head to about my shoulders. When this happens I abruptly say " Oh my God!" So she replies " Is that a good 'oh my god' or bad?" "Bad!bad!" I say.. Seriously?! So she asks if she should take it off? And of course immediately I say "yes! That would be great!" well obviously that is not an actual option because she tells me it is needed to take the images of my brain so I either need to buck up or reschedule and get some Valium before I come back. At this point I kinda knew it might be awful so I planned ahead and took a mild dose of anti anxiety medicine.. Obviously not helping so I took a deep breath like i was going to plunge into deep water, I summoned the strength of Jesus and okay, let's try it! I did not want to reschedule.. As I was anxious enough for results and answers and I wasn't gonna be the baby that walked out..
So they put the helmet on and gave me a button to push if I freaked out.. Then they rolled me into a tube and it covered me from my head to my waist. So I closed my eyes and breathed and prayed the whole time.. Meditate might be a better word but it helped!! I knew I could do this for 15-20 mins.. I did feel my tattoo heat up and I did get really thirsty.. Not sure if that's from the magnets or not but, it part of the story.. So, they rolled me out and scolded me on wiggling my feet then I asked if I could have a drink of water and she said no, you have to remain exactly as you are and gave me a shit to do the contrast images.. Of course I have the smallest most elusive veins.
They dug around my arms and let me mention I still had this iron man helmet on my head and I remember thinking.. This is my version of hell! I have had that thought one other time and it was on a canoe trip in the middle of a thunderstorm in a metal canoe and I was freezing and the canoe tipped and I got sucked into the current.. Yes, they are both hell like experiences for me!
I made it out of there with no button pressing and now I get to wait a week for results.. Argh! But I know that if I have this tumor I will have to go back in and do this again and again..
If you are one of the people who asked me how the MRI was and I answered Awful or horrible.. That is why! Not because my results were bad just cause I'm a claustrophobic lady!
You go in there sans metal or bra in my case and there are two ladies, one who helps you..and one that is grumpy and sit behind the windowed wall.. Now that I think about it.. They stay behind the windowed wall while the machine is ON and I am on a table attracting magnets to me with no protection.. Weird. Anyways, so she asks if I have tattoos and I say yes, on my arm she says well it may heat up a bit.. WTH?.. Okaay? So I lay on a padded board after I put on my fancy hairnet and earplugs then she straps my head down with a belt and starts to pull this helmet down over my head which covers my whole head to about my shoulders. When this happens I abruptly say " Oh my God!" So she replies " Is that a good 'oh my god' or bad?" "Bad!bad!" I say.. Seriously?! So she asks if she should take it off? And of course immediately I say "yes! That would be great!" well obviously that is not an actual option because she tells me it is needed to take the images of my brain so I either need to buck up or reschedule and get some Valium before I come back. At this point I kinda knew it might be awful so I planned ahead and took a mild dose of anti anxiety medicine.. Obviously not helping so I took a deep breath like i was going to plunge into deep water, I summoned the strength of Jesus and okay, let's try it! I did not want to reschedule.. As I was anxious enough for results and answers and I wasn't gonna be the baby that walked out..
So they put the helmet on and gave me a button to push if I freaked out.. Then they rolled me into a tube and it covered me from my head to my waist. So I closed my eyes and breathed and prayed the whole time.. Meditate might be a better word but it helped!! I knew I could do this for 15-20 mins.. I did feel my tattoo heat up and I did get really thirsty.. Not sure if that's from the magnets or not but, it part of the story.. So, they rolled me out and scolded me on wiggling my feet then I asked if I could have a drink of water and she said no, you have to remain exactly as you are and gave me a shit to do the contrast images.. Of course I have the smallest most elusive veins.
They dug around my arms and let me mention I still had this iron man helmet on my head and I remember thinking.. This is my version of hell! I have had that thought one other time and it was on a canoe trip in the middle of a thunderstorm in a metal canoe and I was freezing and the canoe tipped and I got sucked into the current.. Yes, they are both hell like experiences for me!
I made it out of there with no button pressing and now I get to wait a week for results.. Argh! But I know that if I have this tumor I will have to go back in and do this again and again..
If you are one of the people who asked me how the MRI was and I answered Awful or horrible.. That is why! Not because my results were bad just cause I'm a claustrophobic lady!
Monday, October 8, 2012
Halloween Costumes 2012
My kids love Halloween, okay.. What kid doesn't? But Avery wants to see the "scary stuff" every time we go to Target! I'm pretty burnt out after how often we frequent Target.. So, they both have had their costumes picked out since this summer. Avery wanted to be "Rapunzel with the long hair" and Ethan wanted to be Mario. Well about two weeks ago I went over to my friend Alison's to help her pack and she was going to get rid of her sons too small Spider-Man costume. I took it home for Ethan since he likes to wear his costume from last year.. Bumblebee Transformer. I figured he would wear it around the house since his other one is ragged.. I've already busted out the sewing machine once on it! So.. When he saw the Spidey costume he was thrilled and declared that this was the costume he was gonna wear.. No more Mario!! Avery also changed her mind and was captivated by a witches broom and hat at target.. I couldn't pass it up since it was half the price of the Rapunzel costume! So here they are modeling their new choices! 
Wednesday, April 11, 2012
Ethan's 5th Birthday Party..i'm a lil late posting oops
So, we had Ethan's 5th Birthday Party at Monkey Bizness here in Olathe. He decided he wanted to invite his whole class and pretty much every friend he had, so it worked out perfect that they allow up to 25 kids not including the birthday boy! The theme was Mario, of course. Mae-Mae and Papa came down from Iowa for the weekend and my great aunt, uncle, cousin and his wife were there too. My cousin Craig is starting a photography business so, he took some pictures for us! It was lots of fun! Now Avery can't stop talking about what she wants for her birthday party.. Oh boy!
Friday, March 2, 2012
Ethan is FIVE!
My oldest is FIVE. I cannot believe it. Where has the time gone? It seems like yesterday that I was just pregnant with him, working at Sprint. Now I've been warped five years into the future! Ethan is such a clever boy. He has always wanted to know how things work (like his father) and he is such a sweetie. Loves animals and his little sister, Avery. He is such a protector and anytime anyone is sick he says "don't worry, I will take care of you" I thought it would be fun to look back on how he has changed over the last five years.
Newborn Ethan Oakley 8lbs 11oz 2/28/07
Ethan turns ONE!
Ethan is Two!
Ethan is Three!
Ethan is Four!
Ethan is FIVE!
Newborn Ethan Oakley 8lbs 11oz 2/28/07
Ethan turns ONE!
Ethan is Two!
Ethan is Three!
Ethan is Four!
Ethan is FIVE!
Puppies! Puppies! Puppies!
It's been a while since I updated my blog or uploaded my camera for that matter. When I did, there was probably over a hundred photos of the puppies we fostered last month.
The most common question when I told people I was fostering puppies was:"Are you Crazy?!" followed up with "How did you get into that?" So, here are the answers..
If you know me, you know the answer to the first already, yes, slightly ;-)
I just have such a love for animals (I mean, show me a person who doesn't love a puppy and I will give you $10. Only $10 cause there are some WEIRD people out there..) I use to take in wayward people(that's another story), now its just adorable pets..
So, how I got into this. My good friend Toni has fostered several litters of puppies through a great animal gescue group in Kansas City called HALO. (Helping All Little Ones)I happened upon Facebook one evening and Toni had posted looking for help taking in this litter of four. She already had her hands full with another one and couldn't take it on herself. So, I thought to myself.."How hard could it be? They are just puppies and the kids would love it! It would give me something to do, maybe fix my baby fever, I'm so in!!"
Then, I had to text my husband. When he didn't respond I called him and his response? "I don't know...pause..are you asking me or telling me?" I decided the latter :-) If you know Nate, like I do, you know he will logically say no but once IN the situation he will love it! Boy was I right! So, I let Toni know I was IN! and she said.. "Are you sure? It's ALOT of work.. It's A LLOOOTTT of work."
Again my brain said "seriously, what's wrong with everyone? how hard can it be?! They are itty bitty puppies.. I got this!"
To give you the timeline: the facebook posting and messaging happened Friday night. I had the puppies mid-afternoon the next day. All four shih-tzus.
We got to name them, which was hard, like picking a baby's name! We got to play with them and ooh and ahh over them and of course clean up poop, bathe them DAILY and don't forget blow dry. By the time a week was up I was spent. I now knew that Toni was right. She was trying to send me a clue by repeating over and over.."it's a lot of work". I got it now.. Actually I got it the first day Nate went back to work. I was standing in the kitchen with four puppies, plus my own pup and two toddlers all whining or asking me for something. I thought my head was gonna explode. I did actually develop an eye twitch towards the end of the week. haha
But, the point is, It was so fun even though it was hella hard. I would do it again in a heartbeat! well, once the kids are older. I definitely got attached quickly and felt a loss when they left. But I did find out that all but one kept there names that we gave the. It makes me feel like they have a lil part of us with them still, Here are some highlight pics of their time with us. Enjoy!
This is Gus, the runt of the litter and Ethan's favorite
Tbis is Lola, who got adopted by a friend
Here is Ethan with Greta, the DIVA
Avery is holding Tebow
Hudson is playing with the girls
My sweet pup
The most common question when I told people I was fostering puppies was:"Are you Crazy?!" followed up with "How did you get into that?" So, here are the answers..
If you know me, you know the answer to the first already, yes, slightly ;-)
I just have such a love for animals (I mean, show me a person who doesn't love a puppy and I will give you $10. Only $10 cause there are some WEIRD people out there..) I use to take in wayward people(that's another story), now its just adorable pets..
So, how I got into this. My good friend Toni has fostered several litters of puppies through a great animal gescue group in Kansas City called HALO. (Helping All Little Ones)I happened upon Facebook one evening and Toni had posted looking for help taking in this litter of four. She already had her hands full with another one and couldn't take it on herself. So, I thought to myself.."How hard could it be? They are just puppies and the kids would love it! It would give me something to do, maybe fix my baby fever, I'm so in!!"
Then, I had to text my husband. When he didn't respond I called him and his response? "I don't know...pause..are you asking me or telling me?" I decided the latter :-) If you know Nate, like I do, you know he will logically say no but once IN the situation he will love it! Boy was I right! So, I let Toni know I was IN! and she said.. "Are you sure? It's ALOT of work.. It's A LLOOOTTT of work."
Again my brain said "seriously, what's wrong with everyone? how hard can it be?! They are itty bitty puppies.. I got this!"
To give you the timeline: the facebook posting and messaging happened Friday night. I had the puppies mid-afternoon the next day. All four shih-tzus.
We got to name them, which was hard, like picking a baby's name! We got to play with them and ooh and ahh over them and of course clean up poop, bathe them DAILY and don't forget blow dry. By the time a week was up I was spent. I now knew that Toni was right. She was trying to send me a clue by repeating over and over.."it's a lot of work". I got it now.. Actually I got it the first day Nate went back to work. I was standing in the kitchen with four puppies, plus my own pup and two toddlers all whining or asking me for something. I thought my head was gonna explode. I did actually develop an eye twitch towards the end of the week. haha
But, the point is, It was so fun even though it was hella hard. I would do it again in a heartbeat! well, once the kids are older. I definitely got attached quickly and felt a loss when they left. But I did find out that all but one kept there names that we gave the. It makes me feel like they have a lil part of us with them still, Here are some highlight pics of their time with us. Enjoy!
This is Gus, the runt of the litter and Ethan's favorite
Tbis is Lola, who got adopted by a friend
Here is Ethan with Greta, the DIVA
Avery is holding Tebow
Hudson is playing with the girls
My sweet pup
Thursday, December 1, 2011
Puffy Coat Chronicles
I decided to blog about this because I am so excited and I have been trying to find a suitable winter coat now for a few years.. one that is cute, flattering and in budget! My dear friend Heather got me turned on to Lands End a while ago. I will admit I always thought of it as a granny website to buy clothes, But actually they are pretty nice. Simple designs which I like and good quality! So, Thanks H! Anyways, last year I got a coat from them from my Stepdad. But when I got it I felt like a huge marshmellow and I couldn't move or sit in the car in it at all. I decided to take it back to the Sears locally (free returns) and looked for another coat.. I never found one so I think I ended up using the coat money on jeans and a nice pair of shoes :-) Sorry G!
This year I decided I am going to find a jacket I love and hope its under 100. Well lo and behold on Lands End they have a new Diamond quilted down jacket.. the word jacket is important in this because parkas are too long and make me feel bigger than I am .. I need no more help with that thanks! So, I took to the lappy toppy and researched the reviews and overall people seems to like it, it's not too puffy, but its still warm and stylish. The one downside is that the reviews say there is some shedding since it's a down coat, but isn't that to be expected with anything "down"?
So a couple days ago I was going to purchase said coat but, I ended up sick and never got around to it on Cyber Monday.. they had it 30% off. I was kind of upset but, knowing Lands End they have a sale pretty much every week. Boy am I glad I waited because I got an email today from Lands End that had a 40% off one item and Free Shipping!
So, I just went for it and ordered it! The hardest part was picking which color I want. After much reading reviews and going back and forth between Red (which reviews said was fire engine red. Also, the color of Avery's coat) I didn't want that bright or to have mini & me matching coats. Then I liked brown since it's safe and if I ever get these awesome Sorel boots it would work well together. But, let's face it: Brown is boring.. So, the next option was white or as they had it labeled Ivory which also kinda boring but, reminds me of being a Snow Bunny. Then there was another option I was considering it was labeled Deep Amethyst. I am not really a purple girl but, everyone on the reviews was raving that it was a great color and was not actually purple but more of a cross between blue jeans and purple.
I wasn't quite sure what I thought of that, will it look good with jeans if it is jean colored? will it match my dream boots?
will my hair color go good with it? will my makeup have to change.. Yes, I think all these thoughts! I mean, This is a coat I will be wearing pretty much everyday and since it's not your common brown, my logical side had to say WHOA!! let's think about this coat named Amethyst. After much internal debate between boring brown and adventurous amethyst. I took the plunge and ordered it!
But, not before I google image searched what it actually looks like in outdoor lighting. See for yourself. I hope its as amazing as this model makes it look! ;-) Now just have to wait for the guy in brown to make its debut!
But now I think these boots might go better with it, even though they are pretty vivid, and not what I would normally order.. they might be cute?!
This year I decided I am going to find a jacket I love and hope its under 100. Well lo and behold on Lands End they have a new Diamond quilted down jacket.. the word jacket is important in this because parkas are too long and make me feel bigger than I am .. I need no more help with that thanks! So, I took to the lappy toppy and researched the reviews and overall people seems to like it, it's not too puffy, but its still warm and stylish. The one downside is that the reviews say there is some shedding since it's a down coat, but isn't that to be expected with anything "down"?
So a couple days ago I was going to purchase said coat but, I ended up sick and never got around to it on Cyber Monday.. they had it 30% off. I was kind of upset but, knowing Lands End they have a sale pretty much every week. Boy am I glad I waited because I got an email today from Lands End that had a 40% off one item and Free Shipping!
So, I just went for it and ordered it! The hardest part was picking which color I want. After much reading reviews and going back and forth between Red (which reviews said was fire engine red. Also, the color of Avery's coat) I didn't want that bright or to have mini & me matching coats. Then I liked brown since it's safe and if I ever get these awesome Sorel boots it would work well together. But, let's face it: Brown is boring.. So, the next option was white or as they had it labeled Ivory which also kinda boring but, reminds me of being a Snow Bunny. Then there was another option I was considering it was labeled Deep Amethyst. I am not really a purple girl but, everyone on the reviews was raving that it was a great color and was not actually purple but more of a cross between blue jeans and purple.
I wasn't quite sure what I thought of that, will it look good with jeans if it is jean colored? will it match my dream boots?
will my hair color go good with it? will my makeup have to change.. Yes, I think all these thoughts! I mean, This is a coat I will be wearing pretty much everyday and since it's not your common brown, my logical side had to say WHOA!! let's think about this coat named Amethyst. After much internal debate between boring brown and adventurous amethyst. I took the plunge and ordered it!
But, not before I google image searched what it actually looks like in outdoor lighting. See for yourself. I hope its as amazing as this model makes it look! ;-) Now just have to wait for the guy in brown to make its debut!
But now I think these boots might go better with it, even though they are pretty vivid, and not what I would normally order.. they might be cute?!
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